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Acceptance in Chronic Illness
Aamir Khakwani
Having a long-term, or chronic, illness can disrupt the patient’s
life in many ways. They may often be tired and in pain. The illness
might affect the appearance or their physical abilities and
independence. They may not be able to work, causing financial
problems. For children, chronic illnesses can be frightening,
because they may not understand why this is happening to them. It
should to be noted that the person who is suffering from any sort
of chronic illness does not accept it immediately or overnight. It
requires the help of the family members and friends to help the
sufferer cope with accepting the disease. According to foundation
of Nephropathy, the five stage of acceptance of a disease from the
sufferer are:-
Denial
For many people, being diagnosed with any sort of chronic
disease is the first time they have ever been faced with
significant, irreversible disease - for themselves or within the
family. It's a difficult concept to deal with, and many people
initially try to minimize its impact by not accepting it right
away. They may think there has been a mistake, or that it's just
not something they need to worry about.
Anger
People sometimes respond to this by becoming angry at
themselves, or at various aspects of the "establishment" or
"system", or at other people. They are angry at themselves for
getting sick or for not having done certain things, and they are
angry at doctors because the disease was not diagnosed sooner or
because they cannot cure it.
Bargaining
Bargaining and denial are closely-related. In denial, you sort
of forget you have anything, or you refuse to accept it. In
bargaining, you accept that you have the disease, but you start
convincing yourself that you will cure or stop the disease by doing
certain things, and these are usually things that unduly deprive
you of something or things for which you have to make a personal
sacrifice which might not be necessary.
Depression
When the patient sees that even with personal sacrifices are
not curing him and his condition is either remaining the same or
detoriting, he will go through the next stage. This may also leave
the sufferer feeling a little depressed, perhaps because they feel
powerless or hopeless. As time passes, and perhaps with increased
knowledge about the chronic disease that they are suffering from
they will adjust.
Acceptance
It is a natural process that we all eventually learn to live
with the problems that we are suffering from the the person who is
suffering from the chronic illness will accept the diseases he has.
Acceptance is knowing that, while we don't choose any disease and
we would prefer to have it, but with proper treatment and perhaps
with lifestyle changes if necessary, we can live a good life. Even
people who have reached end-stage illness will go on with their
lives, even though it may have some limitations they didn't have
before.
Family relationships shift over time as roles and responsibilities
change with the illness. Such shifts present special problems in
communication. Other relatives (such as siblings, children, and
grandparents) or friends may be so uncomfortable with the situation
that they may deny the illness. They may feel overwhelmed and cut
off communication at a time when they really need each other's
support. If the strains are too great, a family member might shut
down, feeling hopeless, isolated, and trapped. Sometimes relatives
fret over minor issues while holding back painful news, angry
feelings, or resentments.It is necessary that the sufferers are
provided enough time to go through all the phases and those others
do not overwhelm them. It should be kept in mind that these
individuals are already going through a major stress in their lives
which requires life style management and at that time all they
require is the family support.
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